Just when you think everything is under control, everything changes! Well as many of you already know, CHP has terrible OI care. Wait let me rephrase that, they have no OI care. This is the reason we get our major treatment from Omaha. Dr. E wants to rod Lilly’s femurs sometime around May-June but I am a little uneasy. I know he is world class and an OI expert. Maybe I am being paranoid because it is surgery and my baby will only be 1. The biggest doubt was put in my head by CHP. He basically told me I am crazy if I allow them to rod Lilly which I know isn’t true but that stuck with me. I am just so bothered by his arrogance but then again it made me feel like I should get a second opinion regarding the rods.
Today was Lilly’s 9 month check up. I told her pediatrician about it and she thought it was a good idea to get a second opinion. So that leaves me searching for another doctor. She suggested Shriners in Erie but I feel like I should make the drive to Montreal. I will have better peace of mind. I am also back to looking for local ortho doctor. I just do not see the point in going to CHP. We agree on nothing so it’s a waste of time, money, and radiation. The one thing I am thankful for is having the most amazing pediatrician in the world! I literally could not ask for a more humble, nice, awesome doctor.
Lilly got a shot and her iron and lead tested. Iron looked great! Her stats were 26.5 inches and 14 lbs.
I don’t think I have posted since but… we have 2 bottom teeth!!! One right after the other. So far she said they look great. We aren’t 100% sure but we don’t think the OI has affected her teeth. That was music to my ears.
Lilly is napping so mommy is going to clean!
