So I am thinking that I’ve gone into the wrong profession (nursing) because I strongly dislike hospitals and most doctors. I am tired of being told that I’m an idiot and I’m wrong. I think my first question from now on will be, “how many OI children have you seen in your lifetime”. Every time we have seen a resident, they have been great but as soon as the attending comes in, completely different story. I have been told that it is impossible that anything is broken because she is so happy. Um, yes. My child is one of the happiest babies you will ever meet and does not cry much even when in pain. The past two breaks the attending didn’t even come back because once again, I proved them wrong. I cannot stand being made to feel like I’m an idiot about my own child. I live with her, you don’t so PLEASE do not tell me something is wrong and impossible. Just because you have MD by your name does not make you smarter than me when it comes to Lilly. Also, if I am bringing my child in for a fracture, why isn’t she given any pain medication at all? We arrived at 1:20pm. Finally after 6 hours, they bring in a prescription for ibuprofen. No… I want the medication NOW. I am getting beyond frustrated with Children’s.
Well that was my vent but the story is….
Lilly was super fussy the past few days which is not like her at all. Certain ways that we would move her, putting her in her car seat, or lifting her butt to change her diaper made her really uncomfortable. She wants to stand and sit lately so I was thinking possibly a compression fracture or something in her hips. Instead of just doing an x-ray on what we suggested, they did the full body which was actually okay because it’s time for her check up with her local doctor. The said everything looked great except a possible fracture in the right femur. They wanted another x-ray to double check. They weren’t positive but put a harness on her to be safe until her doctor came back from vacation. I wasn’t a fan of it because it’s so restrictive but it was only for a few days.
Monday morning we woke up and she had the straps off and they were digging into her skin leaving red marks. Called the ortho on call who happened to be the doctor who saw her Sunday night. He said the second set of x-rays are questionable so I should take off the harness completely and see how she does but to come back with any sign of discomfort. It’s been 24 hours and she is okay. I am still thinking there may be a small fracture especially since it’s the right femur which is the worst bone in her body. If so, hopefully it’s a quick recovery.
I did call Omaha and they said rod surgery between 11-13 months meaning April-June. We are going on vacation in May so I am probably going to schedule end May-beginning of June.
Well that’s all for now. Friday is her appointment with her local ortho so we will see what he has to say!
